I had my first planning appointment for Radiotherapy. Sam drove me over and Harry came too. The appointment was at 7pm, which was unusual, but left plenty of time, or would have for normal people, we got there in the nick of time. We managed to get lost in some deserted corridors before finally a friendly cleaner told us we were on the wrong level. So off we went Harry in the lead, Sam setting quite a pace and me at the back, my feeble pin legs struggling to keep up. We got there and they were waiting for us. I took my top off and was positioned on the CT scanner and some lines and dots were drawn on me. Then I was fed in and out of the machine a couple of times. When they were happy, three of the dots were turned into tattoos. Sadly dot was the only tattoo going, there was no catalogue or anything. That was that. The idea is that they can use the scan for planning where the beams go, which is then all computer controlled. It felt good that something was happening.
Tuesday, 25 November 2008
Monday, 17 November 2008
Scan Today....Scan Tomorrow....
Well, I was in the hospital on Friday for a blood test and line redressing. I also wanted to find out the details for my scan which was meant to be scheduled for today. Did the blood stuff and that but when they checked their system for my scan appointment, there was nowt, nothing, zilch.
Monday, 10 November 2008
Panic and Raffles
I've not written a post for a while again, I know, I'm a very bad person. I'm finding it hard to get motivated to do things, pretty much anything, including getting out of bed. I just feel tired, tired and then a bit tired. It hasn't helped that I've had a cold on the go too, which has left me with that annoying ear thing, where whenever you speak it sounds really loud in your head. I keep saying, "what?" or "pardon?" to anything said to me, as I can't hear a sausage!
Monday, 20 October 2008
Scan Day - When Your World Can Change
I had the heavily awaited scan today. I got to the place, was given a big old nasty drink to drink and sat waiting a bit. The waiting room was pretty full and they were an amusing chatty bunch (total surprise, but a nice one!). So the wait was pretty short. They all got called and I was left with a very fat man, a man in a wheelchair and a couple of middle years, where the wife was frequently belching and issuing orders to her husband in her Scottish drawl. Amused me.
Tuesday, 23 September 2008
Wheelchairs and Scanxiety
Stupid temperature! After 24 hours of it behaving, it decided to ping up again, but its back down now and I'm feeling pretty decent appart from the stomach twisting fear of scanxiety. I've mentioned scanxiety before (sadly, not my own term, but if no one comes along in the next 30 days with proof of original invention of it, then I'll claim it as my own, damn it, and fight till the death to defend it, hurrah!).
Wednesday, 10 September 2008
Achtung! Escape is impossible Englander!
Not so Fritz!
Tuesday, 19 August 2008
Not happy :(
I'm back to work, but not feeling that good. My stomach has still been giving me grief and I've been getting this weird double vision type thing going on after I wake up (continuing until it kind of sorts itself out).
I thought I'd be pretty chilled regarding my first scan, but little things keep happening that are freaking me out a bit. Yesterday my right arm seemed to be swelling up a bit. This was what happened on my left arm and was caused by the blood clot. I neither want another clot or for the swelling to be due to growing lymphoma. No sir!
Its a bit tender and it seems to be a bit swollen around the forearm only. I'll keep an eye on it.
My previous upbeat (at least I think it was pretty upbeat) mood is starting to fade. I'm getting fed up now and just want to feel well. Hit a bit of a low.
Thursday, 14 August 2008
Stupid Stomach
It's been a number of weeks since my last treatment but rather than feeling better I've been feeling rubbish. As of today, I feel a bit more energised (read that as: don't just want to sleep (not that there is anything wrong with sleep)).
My stomach has been the biggest offender. Not that it is that big or weirdly shaped or anything (at least I didn't think it was. I feel the need to check it now, due to pure paranoia!). After my anti-biotics were completed, it started hurting quite badly pretty much constantly and my energy dropped right down. Now, a few days later, it seems to be starting to settle.
I've got my CT scan on monday, a blood test on wednesday and will be seeing my consultant for the results on friday. I'm hoping it is smaller than last time but understand that it is not expected to be all gone (dead tissue and scar tissue left behind) due to the type of tumour it is.
If all goes well, a couple of weeks after I will get a PET scan, which will determine if anything left behind is still active (bad) or dead and buried (yay, die tumour scum, die!)
Fingers crossed.
Sunday, 3 August 2008
Last Treatment
Yay! Yay! and thrice, yay! My final treatment (a non chemo one at that) was on Friday just gone, so I have finished my primary treatment. Lordy, it's been a long old slog. Now it's scanxiety time. I've got a CT scan on August 18th. They expect, due to the type of cancer I've had, that there will be tissue remaining, i.e. scar tissue, etc. So as long as it hasn't got any bigger, this scan won't be too exciting. Then, a few weeks later I'll be lined up for a PET scan. This scan is a bit more interesting. You drink a drink containing a form of glucose with a radioactive fluorine isotope attached. Sound fun? Basically any living cells, especially naughty cancer ones, will eat the glucose and so drawing in the isotope. What does this mean? Well, it is a way to check whether the blob that remains of the tumour is alive (bad news) or dead (yay! champagne for all!). So the PET scan is the kiddie that I'm waiting for, as it will tell me whether I'm done and normality can start to return or whether it's time for the next batch of treatment (noooo!).
Right now though, I've got a couple of infections and feel absolutely knackered, despite having 11 hours sleep! Apparently I have an e.coli infection and a suspected CDIF infection. Sounds a laugh. I'm got a new load of anti-biotics to take. One has the aftertaste of a chalk coated rabbit turd (not that I've tasted that many chalk coated rabbit turds, but it's what I'd imagine they'd taste like). Worst of all though and this increases my belief that there is a world conspiracy to stop me drinking any beer, is that there is a big warning on the anti-biotic bottle to "NOT DRINK ANY ALCOHOL". Boo! Another 10 days of no beer. So near and yet so far!
Monday, 16 June 2008
Blood clots rock!
I've got a blood clot in my neck and tonight I celebrate!
No, I'm not completely insane (I have a certificate that says so). If you've been following the blog, it will make sense, if not, then recently I was told that one of two things had happened. Either: My Lymphoma had stopped responding to treatment (bad, very bad) or I have a blood clot (not great, but better than option one). I had a CT scan today. I got to the hospital in Ascot and couldn't find anywhere to park. I was driving round for 30 minutes trying to park and then had to take a chance and wedge my car on some double yellows and hope I got lucky as my scan appointment was getting real close. I ran/hobbled/wobbled to the reception area, filled out a form (you always have to fill out a form of some kind) and within minutes was called in. I got to wear one of the backwards hospital gowns, but only needed to take my top off. I went in, laid down on the magical sliding table, got a needle stuck in my hand (they always have to stick a needle in at some point in hospital). I was pulled in and out of the machine a couple of times and then released back into the wild. Then I got to play the waiting game. Luckily my car was unclamped, which I took as a positive portent of good news (hey, I was clinging onto anything positive looking). I got home, my fence was nearly done and I shot off to get a late late late lunch. Part way through I got a call from my consultant buddy (he's now my buddy, as he gave me good news. I'm pretty fickle).
He said, "...the scan showed two things..."
At this point I held my breath and my mind completed his sentence for him with "1. the Lymphoma has grown and 2. you're a goner!", (not really helping brain!)
He continued, "Firstly, the Lymphoma has reduced in size to 7cm by 2.7cm and secondly, a blood clot is visible in your neck". Okay, so he didn't say it exactly like that. Once I had the first point, I dived in to ask how his alotment was going. Hey, blood clot news can wait!
Anyway, I am a happy boy. Yes, I have a blood clot, but the alternative was not even slightly welcome. Perhaps that is standard hospital policy, when there is some bad news, e.g. a blood clot, perhaps they scare you with a possible worse alternative first, so you're happy with the news! A concept from NLP known as reframing in fact. Even though I know the concept, it still works!
A scanner darkly...
If the title of this post has made you think this post is in anyway about the 1977, Philip K. Dick novel, then I must disappoint you. I was just looking for a title that featured the word scanner or scan and seemed cool. Sorry!
So, I've had the weekend to worry and ponder and it hasn't been too bad. It was father's day yesterday, so I was getting cards and presents and food etc, so that was cool. Today, there is a bloke in finishing off our fence (it was hidden behind an awful bush which we had removed). That's cool, as the fencer bloke is a good laugh and pretty laid back, but my next door neighbour is whinging and complaining about every aspect of it. It was because of her complainig about the fence (which we couldn't see) that we arranged to have it replaced. Now, she stands outside, watching the fencer every step of the way and then stops him and complains about some aspect of it and how e is doing it wrong or intruding on her property, etc, etc, etc, etc, etc, etc, etc, etc, etc, etc, etc, etc, etc, and then some more. I have to come out and calm him down as he was ready to pull her head off (he is a big bloke). So, there's that, which is nice and calming. Also, just had the nurse come in to give me my blood thinning injection (got to love those injections). She is lovely though.
There is also another bloke who is doing some tiling work in our bathroom. He is just doing his thing, but I can't help but wonder if the neighbour is going to find some way to complain about that. I guess she just needs to get creative.
I'm off for my CT scan in an hour. We got a new car the other day. We weren't going to. We were going to be sensible. But, the way the world seems to work, sensible can only be taken so far and then it's necessary to have a bit of silly. So, we went for it and got a new car (well, it's not new new, it is used, but it's new to us). We got an Audi TT, so I can whizz along to my scan and back, stereo on full, shouting as I go. So, however it goes, I'll be feeling pretty good!
Saturday, 10 May 2008
Vanquishing the chest monster
Yesterday was chemo day 5. That's over halfway through, hurrah! Prior to receiving those pretty coloured poisons, known as chemo, I got to see some more details of the scan I had the previous Friday. The measurements have been done and I got to see the before and after pics.
So, the before picture showed the right side of my chest filled with a nasty big blob, aka the chest monster. If left to its own devices, I reckon it would have emerged alien style, a few months later and gone on to consume all before it. Luckily, it was discovered before then and after 4 chemo sessions it has shrunk down. The original beastie measured 10cm by 12cm. Explains why it was making me try and cough my lungs out and why my face and neck were trying to swell up. Now, the current measurements are 9cm by 3cm. So, it is still 9cm long, as it runs from my throat area down into the chest area, but it is only 3 cm wide. On the scan it is hard to see, which is cool. The doc said they have a system of rating the response to chemo. The top rating is exceptional, which is what the doc said applied to my chest monster, henceforth known as the weenie chest squatter (eviction notice being filed).
Chemo 5 went ok. The only difference to the others was that I was dozing off towards the end and was really tired for the rest of the day, or rather, when I got home I went to bed and slept till late evening.
Today I woke up feeling pretty tired, but after I had my meds and the steroids had chance to kick in, I was feeling alright and was up and about. The weather outside is lovely and I'm hoping to fire up the BBQ later, assuming the energy levels hold up. Yay! First bar-bee of the year!
Thursday, 1 May 2008
Scan time
This week I've felt a bit rubbish. I got a chest infection and my temperature shot up. I went to the docs and got some anti-biotics, which started to do the trick. The plan is for us to nip away this weekend and I don't want another bank holiday spent in hospital, so I checked in with the clinic and they told me to come in for a blood test. Anyway, wind back a bit, it's been a bit of a busy day, involving visiting 2 hospitals, getting a scan, a blood test and a shot.
I had a scan scheduled for today. The idea was that I'd then have the results in for my next chemo appointment (a week on friday). The hospital rang me on monday to say they detected elevated blood levels that indicated a possible infection. I had just been to the doctors and got some antibiotics, so I knew what they were talking about. During the week, I'd still felt rough and my temperature had jumped around a bit, so the plan was that I'd give a blood sample at the hospital I was getting the scan at, prior to having the scan and then go to my usual hospital after the scan and get the results, to see if I would be okay for the weekend.
I got to the hospital in good time (thanks to Mr. SatNav), gave a blood sample. The blood was taken by one of the nurses who usually takes it at my local hospital, which was a bit strange, but apparently they go around all the hospitals doing their blood thang.
I got to the scan appointment early, but they were running late. I got brought a big old jug full of a frothy looking clear liquid, which I had to drink over an hour. I had had a scan previously, during diagnosis, so knew what to expect. The main difference was that the drink I got at the hospital during diagnosis (private appointment, thanks to medical insurance) was mixed with squash and tasted good, whereas the NHS version tasted like aniseed and was foul. It took the hour to get through the foul stuff this time. Yack. Not nice. Next time, I'll take my own squash along!
Anway, after an hour they came and took me through to get changed. You get to wear one of those "open at the arse" backward fitting hospital gown efforts. I'm pretty sure they are only for comedy value, to keep the spirits of the nurses up. With my "outfit" on, I was led through to the scanner. It looks like a big, humming doughnut, with a flat bed at the end, that passes through the hole. I layed on the bed and someone came to stick another needle in my arm. They didn't do too great a job of it and sprayed my gown with a touch of the old claret. Anyway, you lie down and they leg it out the room and the doughnut tells you to "breath in and hold your breath". You're then fed through the hole slowly, getting told you can breathe normally, just before you have to anyway. Then they feed in some contrasting dye stuff through the needle in your arm and its time to go through the 'nut again. Finally, they get you to hold your arms above your head and its repeat the drill. Then, that's it. Needle is taken out and you're out of there.
I drove over to the clinic and after waiting a few minutes got to see my consultant, which was cool, as I'd not seen him for a while. He went through my bloods and told me that the infection markers had come down but that I was neutrapenic, which means that the neutraphils in my blood were below 0.2 (where normal is about 3). The neutraphils are the little dudes that make up the majority of your white blood cells and are responsible for fighting infection. So, obviously, when there arn't many around, you're pretty open to infection and more worryingly that can lead to sepsis, which can be fatal. Whilst I was there he was able to show me the scan results. He said they're not officially released but hey, I was happy to see. He showed me the original one, with the chest monster sat there. There were parts that measured 13cm across! It still freaks me out to think about it. Then, he showed the current scan and there was not much left of that big mutha. There are still abnormal cells but no big mass! I was well chuffed. He was very pleased and said I was showing an excellent response and was on track. All good. He was then able to check my lungs and sinuses for infection, which was a bonus. There was a very small amount remaining in the lung but not a lot and the sinuses looked clear now too, which was cool. So, with the antibiotics, he thought I'd be okay to go away, but just to make sure, I was given an injection of GCSF (this stuff stimulates the bone marrow to make white blood cells).
So, all is good. I feel much better today and my blood count should be building up. I just need to check my temperature regularly.