Tuesday, 25 March 2008
It was a nice evening and my son Harry was reasonably well behaved and was happy to crash out in his buggy for the walk back to the hotel. All good.
Thursday, 20 March 2008
This week, my wife, Sam, our and little boy, Harry, have been ill. I guess it was on the cards for it to head my way and that's what happened last night. Annoyingly, this week is the week when my blood counts drop due to chemo mashing up my bone marrow and spitting out lots of dead immune system chappies.
I basically started to feel a bit unwell, with a cough that made my brain hurt (OK, it hurt my head a bit, but I like to exaggerate) and my temperature started to rise. Now, I've been told that if my temp hits 38c, then its off to hospital with me. It started to get close and I really should have rung the hospital and let them know, but foolishly I decided to ride it out. Luckily, it came down again and today it has been slightly higher than usual but not too bad. Even so, I've still felt pretty lousy and been spending a chunk of the day lounging in bed. I'll see how tonight goes and see if the battle v the temperature is on again.
Wednesday, 19 March 2008
This week has been okay. I've felt pretty good since last Friday.
My wife and one of the kids have a cold. She has been laid up in bed and not very well at all. Perfect timing for when my bloods are low. So far, so good though. My poor immune system seems to be holding its own. My temperature is normal and I feel good.
Friday, 14 March 2008
So, a few days since my last post. Just felt knackered and couldn't be bothered to fire up the laptop. Feel somewhat more human today.
Chemo day went ok. I had my first infusion of Rituximab, which meant I was due a long day. I got there around 8.30 and they dosed me up with paracetamol, periton and some steroids, ready for the R. After 3 goes to get the needle in my hand properly (one came out, one missed and one was a bit leaky. Great), the Rituximab infusion started real slow and all went pretty well. As the infusion rate was speeded up (every 30 minutes) I started to go blotchy and they stopped and loaded me up again with periton and steroids and then kicked off again. During this time I had my check in with the doc and found my marker levels were normal but my white count was pretty low (but ok to continue). Last week it had been nuked and the two blood tests I had (post chemo and pre chemo) had it around the 1.0 mark, so it would have dropped between those days, but I don't know where to.
The saturday and sunday had me totally fatigued and with a headache. I felt like I was hung over but uber tired. I didnt leave my bed very much.
Tired, tired and more tired. Really felt fatigued. On the plus side, the nodes in my neck started to become sore on monday and by wednesday had pretty much melted away! Yay! One down, one to go.
Same as monday and tuesday, but at night it was a bit crazy. I just couldn't sleep. Mad, fast thoughts running through my head, just like being a kid on Christmas eve! I reckon it was my body adjusting to the steroids withdrawl and sending me through the roof. I had to get up to pee every hour or so and then drink a load of water again. Mouth so dry. This dry mouth thing is eating my teeth up though. Lots of new cavities coming to town. Stupid cancer.
I feel almost human again. Somewhat tired but not unmanageable, I don't want to stay in bed. My weight is down, so looks like its eatsville time.
Thursday, 6 March 2008
Sunday, 2 March 2008
I spent the weekend in Nottingham, which is where I'm originally from and where my sister Jane lives. I travelled up there friday evening with my sister Chris who had come to visit. The journey went well until we hit the M1 and everything ground to a halt. The last part of the journey that should have taken 20 minutes, then took 2 hours. Lovely!
I drove back home to Maidenhead on sunday morning, ready for mother's day.
My mum passed away 2 years ago, but there's still no escaping buying cards and presents, as my wife will be expecting them from the kids. I got my little two yoer old to "sign his name" on a card and then he took the card and present through to his mum. He insisted on opening the present and also claimed it for himself.
Had a good weekend and last week was pretty good too. I felt pretty normal!