Well, I'm back and focussed again. After the shock of the previous news, especially when my consultant had said there were plenty of back up plans, things are settling. I will not lose to this thing. It is not an option.
Monday, 24 November 2008
Feeling a bit crappy today and yesterday. Had a couple of monster temperatures which drifted down throughout the day. Trouble is it leaves you feeling really weak and rubbish. I can't hear properly out of either of my ears. The right one is sworse and just sounds like the sea, whereas the left one makes my voice sound likes its emanating from the middle of my head. Don't know if it is the cold I had taking longer to clear than I thought or the stupid lymphoma trying to add to my list of annoyances. It's a real pain in the bum. Anyone who speaks to me, gets me saying what, pardon, eh several times and anyone I talk to, I boom at. I can make my ears click by holding my nose and blowing but it hasn't yet popped back to normal (oh, please let it do that soon).
Big thanks and hugs out to everyone who has been sending me information and messages of support. Some people have asked for the full details of what I have, well, it is called:
Non-Hodgkins Lymphoma - Large B Cell Defuse primary mediastinal (THYMUS)
Kind of rolls of the tongue really!
The news so far: Tomorrow I will be going to Reading hospital to be measured up for some radiotheraphy which hopefully will shrink the sucked down. I've been told it could shrink from 0 to 80%, but at the least it should be held. Then there is sthe possibility of seeing another consultant for some RF ablation to kill off the new nasties that have moved into my organs without invite or contract. Hopefully that will reset the clock back a bit.