Showing posts with label Neutropenic. Show all posts
Showing posts with label Neutropenic. Show all posts

Sunday, 21 September 2008

An Illegal Glimpse Over The Fence

We did it!  We mounted an escape bid.  Well, my wife did really.  She is very clever and very cunning (and may also be reading), did I also  mention beautiful and talented too?  :)

They (she and the kids) arrived after lunch today and we told reception we were going for a walk and could be some time.  
Backtracking a bit.  I woke up this morning and was feeling fine!  My arm was looking more like it belonged to me and less to Hellboy.  In fact it looked almost normal (almost, but still a bit squidgy).
I had managed to get through 24 hours without a temperature spike and at a time when I was most fearing having one (one of the lads who is a nurse here has just passed his blood taking test and is eager to let blood.  If my temperature spikes they want a blood sample from my line and my arm too and I didn't fancy him having a good old root around, scratching his head, looking like a dog who was sure it had buried its bone here but then again maybe over there... near the tree (dig), hmmm, howabout next to the fence (dig)).  No.  Didn't want that.
Jumping in time again.  My wife arrived looking lovely (you still reading dear?) and we shot off in the car.  The perfect crime.  The original plan was  to go for a walk round the park, but as the most walking I had done was to the toilet and (mostly) back, we decided to drop in on the in-laws, let the kids play in the garden whilst we had a sit in the sun (me very in the shade).  It was really nice.  I had forgotten how great sunshine was.  My artificially lit room, with only a glimpse through the bars on my windows (okay, slight exaggeration) to the beauty that is freedom.
Yesterday, the doctor had said that if my temperature stays in check and my blood counts keep climbing then they would probably be able to convince the ward uber-fuhrer to sign my release papers.  I was silently hopeful.
Anyway, after a lovely afternoon with my witty, intelligent wife (just checking you're still reading, dear) and the kids, it was time to return.  Rather than drop me off, they came back in and stayed for a bit (until Harry became painful with his constant demands for chocolate and yet another drink).
A little while later a couple of other friends, Gary and Kelly came to visit, which was great as I hadn't seen them for a while.  Sadly, whilst they were here, a sign went up on my door.  I had been marked.  I don't know if it was punishment for leaving the defensive perimeter, but it looks like it may damage my case for release tomorrow.  Basically, after my neutraphil count has jumped up and down over the last few days, today it is 0.5, which is officially neutrapenic and also meant that I should not have left the ward.  Oops, I didn't know.  Open the communications channels here people!  Anyway, all is okay.  I got given my "night time drink" (I opted for hot chocolate, as it is usually the one they can do the least damage to).  I studied said drink and still fail to understand how basic hot chocolate can be made to look and taste so bad.  An enigma scientists will no doubt be debating long after we are all gone.
Anyway, I'll let you know if I manage to will my neutraphils back up tonight and use my get out of hosipal card.  If not, then roll on next "night time drink", perhaps I'll give Horlicks another chance.

Wednesday, 25 June 2008

Released into the wild

I got released from hospital last night.
I went in on sunday, to A&E, with a temperature of 39c. I was taken in and a lovely doctor checked me out and put in the usual needle. Blood was taken and I was given IV anti-biotics.
After a few hours, my blood results came back and I was not neutropenic, but I had an infection and they were going to keep me in. After some more loitering, I was taken for a chest x-ray, which came back clean and I then got allocated a bed.
Didn't sleep too well first night and still had a temp the next morning, when woken up at 6 to have blood taken!
Time there pretty much involved: several hospital meals (which actually weren't bad), lots of IV fluids and trips to the bathroom - dragging a top heavy squeaking drip stand which wanted to fall over (had to more or less waltz with it to keep it upright) and taking of more blood.
Finally, after tracking down a doctor, I asked when I could leave (if I hadn't I think I could have just stayed as long as I wanted). They said that they did not know where my infection had come from and probably wouldn't let me go until they did. After a bit of negotiation and several more hours they said I could go but would need to come straight back if I felt unwell again.
I forgot to mention, while I was in hospital my left hand swelled up. Most likely due to the blood clot but it looked like the false hand of that bloke in the comedy bowling movie Kingpin. It looked fake and kind of freaked me out when I saw it out of the corner of my eye!
Anyway, I'm back home now. Just had the nurse over to give me my latest fragmin anti-coagulant injection (ooh, sweet). The one good thing about being in hospital this week was the constant fluid from the drip meant that I havn't had the steroid dry mouth/dying to pee thing going on...oh, until now. Back in a mo.... There, that's better. Need another drink now though.