Showing posts with label hickman line. Show all posts
Showing posts with label hickman line. Show all posts

Wednesday, 10 September 2008

Achtung! Escape is impossible Englander!

Not so Fritz!  


I'm out!

On Friday, just gone, I was released from hospital on weekend leave, I guess that is like parole.  I was visited by my friend Steve, his girlfriend and their little baby Jack, who I hadn't seen yet.  Being a bloke I just thought, hey, he's my mates baby, cool.  My wife on the otherhand went all gooey!  
"A baby, baby!", she exclaimed.  She then used any excuse or trick to remove said baby from either parents grasp and into her own.  Cooing and ahhing at baby Jack all the time (until he cried, at which point he was handed back).
Basically took it easy on the weekend.  Got looked after and spoilt by my wife, who bought me little treats (yay! go treats!).  
On Sunday evening, I was dropped off at the in-laws, where I would be staying a few days, rather than be sat at home on my own.  
Monday I had to go back into hospital, to have blood taken, get the dressing on my line changed (it had started leaking some blood back and looked horrible) and hopefully to have a CT scan to try to determine what was going on with my arm (and for the docs to have some more pictures to play with.  They like pictures).  
The hospital system really sucks when it comes to getting scans etc done.  It is all done on paper and is a bit random.  They give you a provisional day when you will be done and say they will contact you when they need you and then you hear nothing.  Basically, if the consultant has a more important one to do (in their opinion) then they just bump you down the list.  The best way around that is to make sure that your consultant is harrassing them.  The squeaky wheel definitely gets the grease.  Better still, if your consultant is their mate, then that can prove a winner.  One of my doctors seems to have a bit of power over the CT scan consultant (either she has some dodgy pictures of him or he is just besotted with her), as she seems to be able to make CT scans happen pretty quick.  I was sat in my room, bloods had been done, was expecting a few hours wait when a funny little man with an unusual greasy comb over arrived with a wheel chair.  His name badge identified him as Keith (name changed to protect me from retribution from the greasy haired hospital porters union.  A powerful entity, you don't want to mess with).  He collected my notes and I hobbled into the wheel chair (they don't let you walk, but in my case right then, I was happy to be wheeled).  He zoomed me to the CT scan waiting area (here I am redefining "zoomed" to mean trundle at a very slow speed, with pauses for coughing and regaining of breath).
The CT scan waiting area was a breath of fresh air.  Actually it is pretty rank.  I think the walls were last painted their jolly nicotine yellow many years ago.  Also waiting were 2 other people in wheel chairs.  One who looked like they may have slipped away whilst they were waiting.  They were sat with their head lolling.  Later snores revealed they had somehow managed to fall asleep in such a position.  The wheel chairee next to me either was sniffing or sobbing, but they were so close that I didn't want to turn and look.  
Time passed and wheelie 1 and 2 were taken in and after a few minutes came back out, waiting for their miscellaneous porter to come and return them whence they had came.  This meant it was my turn.
I was wheeled in, then asked to climb onto the bed that feeds through the big doughnut that is the CT scanner.  Sadly the line in my arm was no good for use with the machines automatic dye injector, as "the pressure can cause them to explode" (reassuring!).  This meant that I had to have a new canula put in.  I informed the scanner man, who I knew to be the consultant, that I was pretty short of good veins.  He smiled and said that he is good at putting in canulas and not to worry.  After a few minutes hmmm-ing and arrrr-ing, he agreed that I didn't have many decent veins left.  He suggested trying one on my hand, informing me it'd probably hurt.  He asked like I had a choice, but before giving my consent (or not), he had produced a big old canula needle thing and was jabbing away.  After a few jabs, he had a canula in, but the vein bulged up behind it and it was no good, so that had to go.  He apologised profusely and said he normally gets it first time (I'm getting used to hearing that).  Second time was a charm.  It hurt but it worked.  I was left with a nice spurting of blood up my arm, but that just made me feel manly, so was okay (!!).  Consultant man commented that I was very cheery and upbeat.  How could I be anything else, when I was getting holes jabbed into me?  
The rest of the day ticked on.  They came and changed my arm dressing and then time passed and then my doctor came in.  She told me that the tumour had shrunk very very slightly, but they don't normally measure at this stage.  The fact that it is not getting bigger is good but not to worry about shrinkage at this point.  The scan also didn't show any reason why my arm was still swollen.  Scotland yard were still baffled.  She then said that they will take my line out (hooray) and let me go home properly (until Friday).  After more waiting, my line was taken out.  A process I was a bit nervous about, but which took seconds and was pain free (nice change).  I have to report back on friday, to have a different type of line put in (Hickman line).  This cheeky sucker goes in the chest, which sounds a lot more attractive.  Then, assuming all goes to plan, it is my last cycle of RICE.  
So, I've got a few days of normality (kind of), until once more summoned unto the realm of the physician.

Wednesday, 20 August 2008

Oh Crap! Bad News!

Well, I went in to see the consultant today. I was pretty anxious, as I've been noticing dodgy little symptoms, similar to what I had at first diagnosis. Shortly after going in he told me that the news wasn't good and that the scan showed that the tumour had been growing again. The bastard! Why can't it just die!
Anyway, this means it's plan B (sadly there are no plans C or D, so plan B better work!). This involves going into hospital (where I'm heading shortly), where I'll get a line put in (a tube in a vein) (which I'd been hoping to avoid). Then there will be a 3 day chemo infusion. This regimen is called RICE. My last one was CHOP-R. Then it's 3 weeks off, then back for another RICEing, then 3 weeks off. Then there is a scan. If the tumour has shrunk, it is on to step 2. If it hasn't then...oops, sorry, we're out of ideas. Bye. Don't like the sound of that much, so lets assume it works. Next is a loads of injects to get the body producing extra stem cells which can then be collected. In to hospital then for 4 days of hardcore chemo. This one will blast away my poor immune system and bone marrow that would regenerate it. Hopefully it will also nuke any remaining tumour. Then the previously collected cells are returned and they magically recreate a brand new shiny immune system. Hoorah. Apparently the success rate isn't amazing but it's not rubbish either, but I need to talk to the big man total specialist dude to get those details. So, the boring journey continues. Not sure when I can post again, as hospital beckons.